Life with RA should not be a compromise. It should be about taking control of the condition and not being defined by it. Most importantly, it should prioritize what matters most to each individual living with RA.
By using innovative data collection, engaging communities through traditional and online means, the RA Matters survey explored different aspects of life with RA. This brief qualitative survey, commissioned by Lilly, shed light on the current struggles, aspirations and what matters most to people who live with RA.
Of the 6,208 participants in the RA Matters survey, 5,400 were people who had been diagnosed with RA, and 808 were rheumatologists or healthcare professionals (HCPs) that treat RA. From a Canadian perspective, 809 patients living with RA participated in the survey, while 60 rheumatologists and/or healthcare professionals also took part.
The survey was carried out between November 4, 2016 and February 13, 2017, from eight participating countries: Canada, France, Germany, Italy, Netherlands, Spain, Sweden and United Kingdom. It looked at the personal impact of RA on daily activities, relationships, work and people’s aspirations.
Here is a snapshot of our survey findings:
73% of Canadians surveyed reported feeling frustrated over having their activities affected by RA.
46% of Canadians completing the survey indicated that their career progression had slowed or that they had been forced to retire.
The level of understanding and empathy from those around can have a profound effect on people’s behaviors and emotions. Over 53% of Canadianswith RA surveyed reported wishing that others had a better understanding of the physical impact of their RA.
Despite major advances in the treatment of RA, the physical symptoms of the condition continue to be the main barriers for people undertaking work. Canadian respondents to the RA Matters survey cited: using their hands (49%), fatigue (46%) and pain (45%) as the biggest barriers to carrying out work.
We believe that a deeper understanding of what matters most to individuals –in terms of relationships, activities, work and aspirations –can support people with RA to live the best lives possible.
For more information on the RA Matters survey and to interact with the findings, please